PERSONAL STORIES
Parent and Children's Stories
Ellie's story
Christopher Clynch with Hypoplastic Right Heart Syndrome (HRHS), Ventricular
Septal Defect (VSD) and Transposition of the Great Arteries (TGA)
Ezekiel Timothy Bruce (Sept 2007 - Oct 2007) and Coarctation of the Aorta and Ventricular Septal Defect
Helen Howarth's story of being pregnant with Alex, with all the emotions that she went through.
Isaac Pry and Hypoplastic Left Heart Syndrome
Mummy's Tale of (TGA) a blue baby called Thea
Sienna and HRHS, TGA and VSD
Thomas David Moore and Hypoplastic Left Heart Sydrome
Cordelia Griffin and Transposition of the Great Arteries (TGA) - story so far
Charlie- TGA and VSD
Emily-Jayne's CoHD Story
Mother with Two children who have CHD
Dounya's journey
Complete Atrioventricular Septal defect
You can read an impression of Dounya's journey
here
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Dounya before and after her surgery
Adult CHD Survivor Stories
Aaron Knox - A Heart Transplant Recipient
Christy and TJ (Mother and Son) living with Tetralogy of Fallot
Desiree versus Hyotrophic Obstuctive Cardimyopathy
Hazel growing up with Transposition of the Great Arteries (TGA)
Hilary living with TGA and minor Stenosis of the aorta
Jeni Busta a HLHS Survivor who is Happy with Half a Heart
Kate with dextro-TGA
Lou
ise and Coarctation of the Aorta
Stuart Watson with Transposition of the Great Arteries (TGA) - Awaiting a Heart Transplant
Victor living with TGA
Zoe living with Transposition of the Great Arteries (TGA) after the Senning Procedure
Kurtis Cunningham and Williams Syndrome
If you would like to share your story too please send an email to
alexandra@chd-ni.co.uk
or
chduk@hotmail.co.uk
