An idea was born...
When my daughter Dounya, who was born in August 2008, was diagnosed with a Complete AVSD I did not know much about CHD. I had heard of a hole in the heart but that was as far as my knowledge went and I must admit that I did not know what it really meant.
In my search for information about her condition I learned so many things and I have met the most lovely people in the world of CHD. Like through Heartline which is a fanatstic forum:
www.heartline.org.uk Without their support I do not know how I would have coped through the months pre surgery and the time Dounya had her open heart surgery to repair her AVSD.
I realised soon enough that there is still a lot to be done in raising awareness about CHD and the need here in N-Ireland for more support groups.
Through my own experience I know the feelings you encounter when you have a child with a CHD; and I know now how important it can be to share what you are going through with other parents. You don't have to explain everything because they know and they understand what you are going through.
An idea was born.
This is Dounya just 4 days after her open heart surgery
Dounya NOW:
